Perhaps it’s the lack of awareness and understanding around dementia in the UK that creates the stigma or the public perception of people with dementia.
Dementia is an ever-increasing disease currently affecting 850,000 people in the UK, which is set to increase to around one million by 2025.
Currently there is no cure for dementia. It’s often misunderstood as just part of growing old when in fact it’s a disease of the brain. In our previous article we talked about why there is stigma around dementia, so how do we overcome this?
Having cared for people with dementia for over 36 years in our care homes, our team works hard with friends and families to do this. Our advice:
- Be open
Try to be open about the diagnosis with friends and family. Make sure you’re clear and direct. This also applies to your care givers, don’t feel ashamed about your diagnosis, it’s not your fault. The more information they have the better they will be able to treat and care for you.
- Facts
One of the key things to dispel the stigma around the disease is helping people to understand, so be factual when you talk to people. You could point them to the Dementia UK website or offer a pamphlet to help explain about the disease.
- Support
Make sure you have a strong support system around you, whether that’s friends and family, a support group or network. Sharing experiences with other people in the same situation can help with feelings of isolation and loneliness.
- Connection and communication
Staying connected with friends and family is vital at this time, keep up as many of your daily activities as you can. Ask for help if you need it and make sure you talk about how you’re feeling and how people can help. Often people want to help but are unsure of how, if you communicate it will help you and them.
At Grosvenor Lodge we understand more than most the difficulties having a family member with dementia can cause emotionally and socially. We’re here to support and advise you and your family at every stage. Please do get in contact if you have any questions or need support. We’re here to help.
